A collection of news and information related to Pompe Disease published by this site and its partners.
Top Pompe Disease Articles
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Story | Jan 26, 2010 | 4:32 PMThe movie "Extraordinary Measures," now in wide release, tells the true story of John and Aileen Crowley, whose two youngest children were diagnosed with Pompe disease. The disease, a form of muscular dystrophy, causes severe muscle weakness and...
Story | Jan 13, 2009A little boy diagnosed with a rare genetic disorder wasn't expected to make it to his first birthday, but a new treatment is helping him not only survive, but thrive. Ira Brown Junior really pays attention to what's going around him. The boy wasn't...