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Muscular Dystrophy

A collection of news and information related to Muscular Dystrophy published by this site and its partners.

Top Muscular Dystrophy Articles

Displaying items 1-11
  • Duchenne muscular dystrophy drug could get OK for U.S. sales in 2016

    Duchenne muscular dystrophy drug could get OK for U.S. sales in 2016
    A Northbrook company said it has won fast-track status for approval of a drug that could become the first in the United States to treat Duchenne muscular dystrophy, a fatal muscle disease found most often in boys. Privately held Marathon Pharmaceuticals...
  • Shane Burcaw: Helping families with 'No More Nightmares'

    Shane Burcaw: Helping families with 'No More Nightmares'
    It's the next chapter in Shane Burcaw's life. The 21-year-old has a wildly-popular blog, "Laughing At My Nightmare," followed by 500,000 people on the website Tumblr. He just released his first book, a memoir by the same name, and he has an occasional...
  • Shawnee Mountain offers Pocono Food Truck Festival

    Shawnee Mountain offers Pocono Food Truck Festival
    They are driving a new trend in dining across the country. Food trucks featuring everything from ethnic comfort foods to Asian fusion will be on hand at The Pocono Food Truck Festival. It runs 11 a.m. to 5 p.m. Saturday and Sunday at Shawnee Mountain...
  • Nadine Kirby: Turn green for muscular dystrophy

    I am pleased to announce that the state of Florida has officially proclaimed August as both Muscular Dystrophy Awareness Month and Light It Up Green Month. Florida joins Pennsylvania and Colorado this year in recognizing all nine muscular dystrophies and...
  • Bristol Firefighters Host Boy With Muscular Dystrophy

    BRISTOL — When city firefighters begin their annual fundraiser for muscular dystrophy research this weekend, they'll have a bit of extra motivation: The thought of 4-year-old Justin Bolduc. Justin, a Bristol boy who was diagnosed with muscular...
  • Fundraiser for muscular dystrophy a success

    On behalf of Bethlehem International Association of Firefighters Local 735, I would like to thank all who contributed to the success of our Muscular Dystrophy Association fill-the-boot campaign Aug. 1-8 in front of the fire stations on Broad Street and...
  • The Crowd: Giving back on a 94th birthday

    The Crowd: Giving back on a 94th birthday
    Newport Beach's Margaret Sprague, known affectionately as Peggie, celebrated her 94th birthday July 24, and rather than receive a birthday present, she gave one. In a reception area at Children's Hospital of Orange County, Peggie presented Kimberly...
  • West Hartford Firefighters' Beer-Tasting Fundraiser Is Friday

    West Hartford Firefighters' Beer-Tasting Fundraiser Is Friday
    About 50 firefighters will be pouring beer samples and grilling up food Friday for the West Hartford firefighters association's sixth annual benefit for muscular dystrophy. WEST HARTFORD — About 50 firefighters will be pouring samples of beer and...
  • Where are the positive stories about Obamacare?

    If there were fairness in this world, Rita Rizzo would be a media star. Rizzo, 60, owns a management consulting firm for nonprofit groups and government offices in Akron, Ohio, with her husband, Lou Vincent, 64. Vincent, who suffers from Type 2 diabetes...
  • Japan STAP stem cell researchers' errors not intentional, RIKEN says

    Japan STAP stem cell researchers' errors not intentional, RIKEN says
    The Japanese research institution at the center of a growing controversy over a new type of stem cells said Friday that its investigation of four scientists has confirmed two instances of "inappropriate" behavior but that neither case was severe enough to...
  • Virginia summer camp for children with muscular dystrophy seeks volunteers

    Virginia summer camp for children with muscular dystrophy seeks volunteers
      The Muscular Dystrophy Association (MDA) is currently preparing for its 59th Annual Summer Camp, which will run June 7-13 at the Airfield 4-H Conference Center in Wakefield, VA.   MDA Summer Camp is a week-long, overnight camp where children with...