Muscular Dystrophy
Should A Child Be Allowed To Climb Everest?
My son brought home a recent issue of Scholastic News with Weekly Reader from his 4th grade classroom...and it made me stop in my tracks. The headline "Ready for Everest?" was accompanied by a picture of preteen climber, Tyler Armstrong of California, on a quest to scale the world's tallest mountain.
As someone who is interested in parenting issues...and completed fascinated by Everest....I just had to blog about this topic.
According to his web site, 12 year old Tyler will attempt to set a world record as "the youngest person ever to climb Mt. Everest" in May. ...
Related "Muscular Dystrophy" Articles
Should A Child Be Allowed To Climb Everest?
My son brought home a recent issue of Scholastic News with Weekly Reader from his 4th grade classroom...and it made me stop in my tracks. The headline "Ready for Everest?" was accompanied by a picture of preteen climber, Tyler Armstrong of California, on...
A Push to Make Clothes for Kids of All Abilities
When I read this piece from the Huffington Post - about Runway of Dreams, a non-profit working with the fashion industry to adapt mainstream clothes for people with disabilities - I immediately thought of this Mommy
Marathon exits powerful lobbying group after $89,000 drug-pricing controversy
Northbrook-based Marathon Pharmaceuticals has dropped out of the pharmaceutical industry's main lobbying group following controversy over the company's recent attempt to price a muscular dystrophy drug at $89,000 a year.
Holly Campbell, a spokeswoman for...
Marathon sheds $89,000 muscular dystrophy drug after pricing uproar
Marathon Pharmaceuticals is ready for its turn as the poster child for high drug prices to be over.
Following weeks of anger from patient advocates and members of Congress, the Northbrook-based company announced Thursday morning that it plans to sell its...
Lawmakers question FDA approval of Northbrook pharma firm's $89,000 drug
Sen. Bernie Sanders and Rep. Elijah Cummings last month questioned Marathon Pharmaceuticals over its $89,000 price tag for a drug. Now they're questioning the U.S. Food and Drug Administration's approval of the drug.
Sanders, I-Vt., and Cummings,...
Four New Ailments Being Added To Medical Marijuana Program
Proposals to add fibromyalgia, muscular dystrophy, shingles and rheumatoid arthritis to the list of painful ailments that qualify for Connecticut’s medical marijuana program were endorsed by a state agency Thursday.
The action by Consumer Protection...
Pharma firm CEO insists $89,000 drug is affordable, but what's the true cost?
When Marathon Pharmaceuticals' $89,000 price tag for a year's supply of its newly approved muscular dystrophy drug sparked outrage earlier this month, the company's CEO responded with another figure: $20.
That's how much he expected Duchenne muscular...
Marathon Pharma may get boot from industry organization over $89,000 drug
Marathon Pharmaceuticals' $89,000 price tag for a muscular dystrophy drug has drawn the ire of the pharmaceutical industry's main lobbying group, which is reconsidering whether it wants companies like Marathon as members.
The group, the Pharmaceutical...
Marathon Pharmaceuticals is in the spotlight for drug pricing — again
Marathon Pharmaceuticals is only 6 years old, but this week's uproar surrounding its $89,000 muscular dystrophy drug isn't the first time the company — or its CEO — has faced outrage over drug pricing.
Monday, only four days after it received...
Marathon's muscular dystrophy drug delayed after lawmakers question $89,000 price tag
A Northbrook pharmaceutical company is "pausing" its commercial launch of a newly approved drug for muscular dystrophy — a medication with an $89,000 price tag that has shocked patient advocates and members of Congress.
Marathon Pharmaceuticals'...
Lawmakers question pricing of Northbrook company's $89,000 muscular dystrophy drug
Marathon Pharmaceuticals' pricing of a drug to treat genetic muscle deterioration in about 15,000 Americans, mostly boys, is raising concerns in Congress where lawmakers repeatedly have challenged drug companies.Sen. Bernie Sanders, I-Vt., and Rep. Elijah...
FDA approves Northbrook company's $89,000 muscular dystrophy drug
The U.S. Food and Drug Administration on Thursday approved a Northbrook pharmaceutical company's drug to treat a deadly form of childhood-onset muscular dystrophy — only the second FDA-approved drug for the disease and the first for everyone with the...
State Physicians Panel Urges Four More Conditions Be Qualified For Medical Marijuana
Patients suffering from painful ailments that include fibromyalgia, muscular dystrophy, shingles and rheumatoid arthritis should be able to get medical marijuana in Connecticut, a state panel of doctors urged Wednesday.The proposed expansion of...
Extraordinary Life: Passionate Advocate On Disabilities, Gratitude
Margaret Lavigne "Muffi" Plum was a photographer, an artist and a passionate advocate for the rights of people with disabilities. She believed the antidote for depression or a tough day was gratitude. "Say thank you. That makes a difference," was her...
FDA OK's First Muscular Dystrophy Drug; Awaits Proof It Works
Federal regulators on Monday granted tentative approval to the first drug for muscular dystrophy, following an intense public campaign from patients and doctors who pushed for the largely unproven medication.The approval comes nearly five months after the...
Regional Digest: Registration Opens Thursday For Manchester Road Race
Registration To OpenFor Manchester Road RaceRegistration for the Manchester Road Race will begin Thursday. One of New England's largest and most popular road races, the 4.748-mile run on a loop course through the town's central streets will be held...
FDA to consider approving Northbrook company's muscular dystrophy drug
The Food and Drug Administration has agreed to consider green-lighting a drug that could be among the first of its kind approved to treat a childhood-onset form of muscular dystrophy, Northbrook company Marathon Pharmaceuticals announced...
Windsor Students Raise Funds For Friend With A Muscular Disease
Thomas Hastings is a 9-year-old student who attends John F. Kennedy School in Windsor. He has a bright smile and is a huge Red Sox fan.
Life-Altering Diagnoses
Directly after birth, Hastings was diagnosed with Torticollis, a tightening of the neck...
Wheelchair-Accessible Van Would Mean Fuller Life For Windsor Boy
Nine-year-old Thomas Hastings loves sports more than anything else.His toy box at home is not filled with superheroes, but instead is full of sporting equipment, with a large representation for baseball, his favorite sport.But Hastings, of Windsor, has...
GOP debate fact check: Who's right: Trump or other GOP candidates?
Viewers of the second Republican presidential debate heard inflated claims about Planned Parenthood abortion practices and the risks of vaccines, as well as a dubious assertion by Donald Trump that he wasn't interested in establishing casinos in Florida...