Advocating for Your Own Care
Record your appointments: You likely will be bombarded with information in appointments with your doctor. The National Coalition of Cancer Survivorship suggests asking the doctor for permission to record sessions so you don't miss anything. Also, take good notes or ask a friend to come along and take notes for you while you focus on the questions.
Speak up: Make sure your questions are answered and your concerns are heard. Writing out questions for the doctor may help.
Advocating for the Cause
Run/walk: You can get involved as a runner, walker or volunteer in multistate events such as the Race for the Cure, sponsored by the Susan G. Komen for the Cure, or Avon Walk for Breast Cancer. You can find a race by location or month at komen.org or avonwalk.org. Proceeds go toward education and research.
Push for change: The National Breast Cancer Coalition and its sister organization, the National Breast Cancer Coalition Fund offer an intensive program to train advocates in the science and political savvy they need to effect change on Capitol Hill and elsewhere. For information, see stopbreastcancer.org or call 800-622-2838.
Tell your story: One of the most powerful forms of advocacy is telling your story and views to your legislators.
Counsel peers: If you're a survivor or one year out of treatment, you can help people who call a 24-hour helpline who want to talk to someone with similar experiences. On-Call Peer Counselors is staffed through YourShoes, part of Breast Cancer Network of Strength. Learn more about training and other opportunities at networkofstrength.org.